Laois, Ireland
When were you diagnosed with MS? 2021
What type of MS do you have? Relapsing-Remitting MS (RRMS)
#1: Can you tell us a little about your journey with MS. How did you feel about your initial diagnosis and how it has affected your life?
The diagnosis of MS was unexpected and sudden. After a visit to the GP, I was immediately referred to the hospital, and within two days, I received my diagnosis of MS. In retrospect, I had been experiencing MS symptoms for many years though without realizing it.
#2: What MS symptoms do you have and how do you manage them on a daily basis?
I mostly have nerve pain in my arms and feet, especially at night. During a flare-up, my right leg becomes temporarily unusable for a few days. In addition, I suffer from migraines and severe fatigue that were not present before my diagnosis.
#3: Who/What has been your most important support system?
My family and husband are my primary sources of support. My mother has become a top follower on MS Ireland's social media platform by frequently commenting on posts. My sister constantly sends me links to support groups and organizations that I can get involved with. Additionally, my husband provides daily support. He's like a handsome butler!
#4: Do you use any accessories like canes, walkers, or wheelchairs to manage daily activities?
Not at the moment.
#5: How do you stay positive and motivated in your daily life? What do you do for self-care?
To maintain a positive and motivated outlook, I engage in self-care activities such as sharing multiple self-deprecating memes. I use humor to find light during the hard times.
#6: Your story and experiences with MS are incredibly valuable and can provide encouragement and motivation to others in the community. What words of advice or encouragement would you give to someone who is newly diagnosed with MS or going through a challenging time right now?
The best advice I received was to "stop down playing what you are going through and stop saying 'Thankfully, it is just MS! Because, some people are being told by their doctor, "your results are back and thankfully it's NOT MS". But....Something else (good or bad)!
#7: Have you started a business or mission related to MS? Can you tell us about it and what inspired you to take this step?
I do not have a business at this time. However, I have my MS Instagram page @my_ms_sloth_diary and I have met some of the bravest, gorgeous-hearted fellow spoonies there. I needed this page because, when I was diagnosed, I had NO IDEA what I was getting in too. But having the support of the MS community has made a world of difference.
Want to become a part of the movement? Click the box below to order your gear!
Leave a comment, and share your experience. We would love to hear from you!
Comentarios