Florida, USA
When were you diagnosed with MS? December 2015
What type of MS do you have? Primary Progressive MS (PPMS)
#1: Can you tell us a little about your journey with MS. How did you feel about your initial diagnosis and how it has affected your life?
Back in 2014, I began experiencing instances where my knee would randomly give out, and I noticed that my gait was off. I decided to see an orthopedic doctor about it, who referred me to a neurosurgeon. The neurosurgeon then sent me to a neurologist, who ordered an MRI scan. After that, I went to an MS neurologist who specializes in treating Multiple Sclerosis. They ran more tests and confirmed that I had Primary Progressive Multiple Sclerosis (PPMS), which unfortunately has no cure. At the time, there were no affordable medications available other than off-label options. It was earth-shattering, to say the least. At first, I was in denial about my diagnosis, but as time passed, that was the wrong assumption as my MS continued to progress. Nowadays, I have to rely on a walker and scooter for my daily activities of living.
#2: What MS symptoms do you have and how do you manage them on a daily basis?
I have almost no mobility left, and on top of that, I suffer from spasms in both my legs and feet. Earlier this year, I received a diagnosis of peripheral neuropathy. As a result, my feet and toes tend to swell up and turn red. I also experience a burning sensation, as well as pins and needles. It's not fun to deal with at all.
#3: Who/What has been your most important support system?
I got divorced two years before being diagnosed. Since then, I have had to rely on my family - specifically, my two older kids and my sister. I consider them all to be a great blessing in my life.
#4: Do you use any accessories like canes, walkers, or wheelchairs to manage daily activities?
Currently, I use canes, my walker, and a scooter.
#5: How do you stay positive and motivated in your daily life? What do you do for self-care?
I've had to make a lot of changes to my lifestyle, and in coping with these changes, I mostly turn to prayer. Between my prayers, my family, and my special friends I push through.
#6: Your story and experiences with MS are incredibly valuable and can provide encouragement and motivation to others in the community. What words of advice or encouragement would you give to someone who is newly diagnosed with MS or going through a challenging time right now?
Never give up !! When u need help seek it and be your own advocate.
#7: Have you started a business or mission related to MS? Can you tell us about it and what inspired you to take this step?
Advocating for people with disabilities is my mission. Living with MS has taught me just how much we take for granted in our lives every day.
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